From Laughter to WINE-ing and Back to Tears

First the laughter…

We definitely know that laughter is very therapeutic.  And slightly lucrative for non-profits. Rachel and I have become involved with ComedySportz Improv Theatre of Richmond and throughout the month of June, they let CJSTUF take over during halftime of every show in order to play “Stick The Butterfly To The Flower.”  People bought little paper butterflies with sticky dots on them for a few bucks and for some crazy reason, allowed us to blindfold them.  Then they tried to stick the butterflies to a big flower on the wall.  The butterfly that ended up closest to one of the numbers on the flower won a prize.

Just that little game garnered over $300 for CJSTUF.

On top of that, during the last weekend of June, $2 of every ticket for the Friday night and Saturday early shows were donated to CJSTUF.  We don’t have a final tally yet but we’re confident that overall, we raised enough to help one family.  Thanks ComedySpotrz!

Now for the WINE-ing…

This month, our Business Of The Month is really only it for one day but it’s a doosie!  Kate Hall over at RichmondMom.com has developed a tremendous relationship with the Wine Loft in Short Pump and the first Wednesday of every month is what’s called the Wine Down where a local non-profit benefits from ticket sales, raffles, and other donations.  They’ve raised as much as $900 during these events and the last time CJSTUF was the beneficiary of a Wine Down, it was the largest event they had had up to that point.  We’re hoping to set another record on the 11^th.  It is certainly possible because this year, an anonymous donor has offered to match donations if over $500 is raised at the event.  How's that for incentive?

Yeah, it’s not the first Wednesday but the whole July 4^th thing got in the way.

Tickets are $10 and include a raffle ticket (more available for $1 each), appetizers, and discounted wine.

The Wine Loft of Richmond is located at 4035 Whittall Way, Glen Allen, VA 23060 right next to Spirited Art (which just happens to have been our BOTM for May).  Festivities will get underway at 6:30 and you are strongly encouraged to arrive early.

Time for the BONUS ROUND!

Rachel has surpassed the 1200 vote mark in her quest to repeat as an Eagle Rare Life grant winner.  This year the grand prize has been increased to $30,000 to be donated to the charity of the winner’s choice and we feel confident that we can win it this year.  Last year’s secondary prize is helping to fund the new Lunch Bunch at MCV/Children’s Hospital Of Richmond for which CJSTUF has partnered with Connor’s Heroes Foundation and local restaurants to provide meals for the families of children receiving treatment on the 7^th floor of VCU’s Children’s Hospital of Richmond.  $30,000 would take care of a lot of meals.

People can vote once every 24 hours here.  Please set your alarms and spread the word.

So we come back to the tears.  It always seems to happen about every 6 months and July is very tough for us.  This 4^th of July weekend, we are traveling to Tennessee to visit my dad and have something of a small family reunion.  Rachel also has two book signings this weekend in Morristown at JavaGarden on Saturday and my dad’s church on Sunday (gotta take the opportunities when they happen).  Then we head back to Richmond to face the 9^th and think about our beautiful baby girl on her 7^th Birthday.

With every success that comes to CJSTUF, we are given a little solace.  The latest drop comes from knowing that because of Rachel’s initial book sales, we’ve been able to fund one family’s financial assistance grant.  That’s YOU, Network.  Because you have purchased books, because you voted Rachel into an Eagle Rare Life Award grant, because you donate what you can, when you can, we are able to fulfill our Mission which helps us to deal with things like July 9 and allows us think of Charlotte without curling up into

a fetal position.

And speaking of fulfilling the CJSTUF Mission, 10 Financial Assistance Grants totaling ($5,000) went out in the mail today.  You again.

So thank you for the world’s largest coping mechanism.  Thanks for just being there for us.

Don’t forget to love on your children.

I’ll take that glass of wine now.

CJSTUF Spotlight: Rachel Reynolds

Position: Executive Director, Co-Founder, CJ’s Mommy

Rachel Reynolds is originally from Daytona Beach, Florida where her mother, Gayellen, and stepfather, John, currently live.  She grew up listening to the roar emanating from Daytona International Speedway and working at her godmother’s hotel on the beach.

An exceptional student, Rachel participated in the International Baccalaureate program at Spruce Creek HighSchool in Port Orange and graduated second in her class.  She entered the University of Miami in Coral Gables as a Music Therapy Major and graduated with her Bachelor’s Degree in 1997.

While at “The U,” Rachel met a long-haired, wild dressing, authority bucking jazz vocal graduate student named Roger who eventually, somehow, talked her into marrying him and running away to Richmond, Virginia.  It just so happens that she conveniently had an internship waiting for her at the Virginia Treatment Center For Children so it worked out ok.

After two years in Richmond, they picked up stakes and moved to Boone, NC where Rachel started graduate studies in Speech Language Pathology at Appalachian State University.  After earning her Master’s, Virginia called again and they moved back; first to Fredericksburg and then finally to Ashland where they bought their first home and where they still reside.

Rachel began working at Commonwealth Autism Services in 2004, left in 2007 to run a small business, and returned to CAS in 2011.  She specializes in ABA Therapy and recently began her run as principal of The Dominion School For Autism.

Right in the middle of all that (2004 to be precise), Rachel found out she was pregnant and on July 9, 2005, gave birth to Charlotte Jennie Reynolds who became the center of Rachel’s life.  Charlotte was a beautiful, sweet (mostly), curly-haired little girl who learned quickly that “being adorable gets you stuff.” She had an amazing little voice that melted hearts and made everyone fall in love with her.  She was, indeed, very special.

In 2009, an ultimate burden was placed upon Rachel and Roger when CJ was diagnosed with a primitive neuroectodermal tumor (PNET) in her brain.  Rachel was pushed to the limit of what a parent should endure and was pushed past it when Charlotte lost her battle on January 7, 2005.

Despite the nightmare, Rachel has been able to continue her life, co-founding CJ’s Thumbs Up Foundation with Roger, acting as executive director.  And through the pain, she has retained her ability to laugh even so far as joining an improve comedy troupe in her tiny amount of spare time.  Because she knows, first hand, the healing power of laughter.

And so, through the sadness and tears, she can also smile as she answers “4-1/2 Questions.”

Four And A Half Questions:

1)      Q: What is your favorite food that you’ve never eaten?

A: Lobster

2)      Q: What is your day job?
A: Principal of The Dominion School For Autism/CAS

3)      Q: What is one of your favorite things about Charlotte?
A: Her laugh and her voice (which is technically 2 things but we’ll let it slide).

4)      Q: What is your top goal for CJSTUF.org?

A: Be recognized nationwide.

            ½)   Q: Wouldn’t it be cool if…
                        A: a celebrity played for CJSTUF on Jeopardy?

For more information on her journey through the world of pediatric cancer, check out her book: Four Seasons For Charlotte on Palari Books or follow her personal blog, I See What You Meme.

Moving Forward

              

Our New Logo

Can’t do much else can we?  As Bruce Barton said, “When you are through changing, you are through.”  We’re hardwired to keep moving forward; to continually try to make our situation better even though sometimes all we do is repeat the mistakes of the past.  But move forward we must and that is what we’re doing here at CJ’s Thumbs Up Foundation (hopefully not with the whole repeating-past-mistakes thing).

Thanks to our generous Network (that’s YOU, generous reader) we’ve had a very good first half of the year.  Revenue is exceeding expectations due to increased donations, more successful fundraising events, and the release of Rachel’s book, Four Seasons ForCharlotte: A Parent’s Year With Pediatric Cancer.  It seems that so far, we have been doing things the correct way and our mission is being well-supported.

The Cover of Rachel's Book

                With all that in mind, it’s time to take some more baby steps forward.  This year, we will award a total of at least 25 financial assistance grants.  This almost doubles our impact from 2011 (so maybe “baby steps” is too conservative a term).  We also have plans to expand our Board of Directors and have welcomed some extremely capable members to the current board.  Our fundraising initiatives like the Butterfly Socials, the Thumbs Up Ball, and the Fall Art Auction continue to evolve into our primary annual events and we continue to seek ways to improve upon the last event’s success.

We are also modifying our online presence a bit.  In the near future, you will see more regular (weekly) blog posts covering various aspects of CJSTUF.org.  We are currently gathering stories and profiles of our Board of Directors, staff, local medical professionals, events, partnering non-profits, and most importantly, the reason we exist - our families.  We will spotlight these courageous families in an attempt to inspire the reader to do more, to dig deeper, or simply to help the healing process by making the families aware that they are not alone in their struggle.

You will soon be seeing small updates (in both look and function) to the website and social media outlets to include software upgrades, calendars, new widgets, and more efficient ways to keep up, and become involved, with CJSTUF.org.

One thing we are NOT changing is the mission.  We will also never forget the curly-haired, sweet-voiced little girl whose strength and courage is the inspiration for what we do every day. (We still miss you, Charlotte!)

It’s an exciting and bittersweet time for us here at CJ’s Thumbs Up Foundation as we continue to move forward, or as Jonathan Agin signs off of daughter Alexis’, Caringbridge posts, “…we are one day further, yet one day closer…”

We are so thankful to all who are helping us make unbearable situations a little more bearable.