Showing posts with label CJSTUF. Show all posts
Showing posts with label CJSTUF. Show all posts

Monday, January 7, 2013

Three Years (Pt. 2)

What can we say about January 7, 2010 that hasn't already been said?  Not much.  Doesn't make us think about it any less.  Doesn't lighten the load of remembering. Doesn't convince the bus driver to go park somewhere else.  It still pretty much sucks.

So what I'd like to do on this third anniversary of Charlotte Jennie's metamorphosis is to offer you music that reminds me (Daddy) of her.

The Great Remember from the CD Rare Bird Alert is the latest tune that has her spirit all over it.  The moment I saw this video of Steve Martin playing his original clawhammer banjo composition during his tour with the Steep Canyon Rangers, I thought of her. It has a beautiful, yearning melody and yet there are still wonderful elements of Martin's humor as he tunes before he plays.

Radiance is a vocal version of a Keith Jarrett improvisation recorded by Julia Dollison and Kerry Marsh.  I believe Kerry's sister put together the video slide show.  It's heartbreakingly beautiful and very difficult for me to watch.

Charlotte certainly loved Dora The Explorer.  She learned several Spanish words and phrases watching Dora and after her first surgery, when she started being able to speak, she counted to 10 in Spanish for us.  It meant an awful lot to hear her do that.

The Chanticleer version of Franz Biebl's Ave Maria is another heartbreakingly beautiful piece and I can't hear it without thinking about Charlotte and becoming a blubbering mess.  (The link comes complete with fireplace)

I believe someone introduced us to  "Two Thumbs Up" by Johnny Bregar after Charlotte died or near thereabouts.  It has become one of our official theme songs and Johnny has been tremendously generous to give us permission to do pretty much whatever we want with his recording.  We promise not to abuse that trust.

Here's another song that someone sent to us after Jan 7, 2010.  It's Jonatha Brooke's version of Woody Guthrie's, "New Star."  The lyrics are actually fairly odd but it came to us at the right time and now it has all kinds of meaning Woody never intended, I'm sure.

Of course, you didn't think I was going to leave out the Disney angle, did you?  Let's start with the last movie Charlotte saw in a theater, The Princess and the Frog.  There isn't a tune on the soundtrack that DOESN'T make me think of Charlotte and there was a time when I would obsessively listen to it every morning when opening up at Romp n' Roll (much to the chagrin, I'm sure, of the rest of the staff); however, I will include my favorite song from the movie, "Gonna Take You There."

How about some Little Mermaid?  "Part of Your World" seems so ubiquitous; so completely over played but it's a Charlotte song so I don't think I will ever get tired of it.

Next comes Mary Poppins.  I don't remember exactly when this movie became one of Charlotte's favorites but all of a sudden, it was all she wanted to watch.  So here's "Let's Go Fly A Kite" which has become one of our unofficial theme songs.

Last but not least by any stretch of the imagination, here's Charlotte's favorite version of Charlotte's favorite song, Frosty The Snowman by Dan Tyminsky.  We actually have a video of Charlotte dancing and sort of doing karaoke to this song.  We also have video of several former NFL players singing this to her on her birthday on July 9, 2009 in the the Nelson Clinic at Children's Hospital of Richmond.  THAT was something to see!  Waddya know? You can!  Here!

I'm sure I've left off dozens of songs and I'll probably be adding a tune here and there for days.  Please feel free to add your own song if it reminds you of CJ.

Today, we invite you to have a chocolate milk toast in honor of Charlotte and if you'd like, eat some "dadoo" (Cheerios or "round cereal") and mac n' cheese.

We love you so very much, Monkey Butt and miss you every day.

Sunday, January 6, 2013

Three Years (Pt. 1)



On January 6, 2010, CJ's Thumbs Up Foundation was officially incorporated, the first step in our process towards 501(c)3 status.  In the three years of our existence, CJSTUF has provided assistance (financial, material, and emotional) to well over a thousand people (children with chronic and life-threatening illnesses, their caregivers, and families).

We couldn't have done it without the support of our fabulous and generous Network.  You have answered every call for votes, donations, and time and for that we are grateful beyond measure.  We blew away all of our budget/revenue projections for the year and are extremely stable heading into 2013.


More importantly, you have helped us ease the burden of many families facing the worst scenario anyone could imagine.



The future is looking extremely bright for the Foundation and our pipe dream goals are seeming a bit less like pipe dreams than they did before.  Please stay tuned for some great upcoming events including CJ's Thumbs Up Ball in February, TEAM CJ's participation in the Monument Ave. 10K on April 13, and CJ The DJ's Bluegrass (Mostly) Boogaloo on Sat, July 20.  There will be a few surprises as well so pay attention.

Thank you, also, for helping US deal with our own grief as well.  Doing what we do is as much therapy for us as it is beneficial for our families.

We wish you peace for the coming year but hope you will also help us partake in a little excitement for CJSTUF along the way.


Love,
Roger and Rachel
Charlotte Jennie's Grownups

Wednesday, December 12, 2012

A reminder of our mission

This week, I had the opportunity to give $4000 to families in need.  Thanks to the incredible generosity of our donors and supporters, CJ's Thumbs Up Foundation has had a wonderful year.  At the December board meeting, our Board of Directors voted to award all eight families on the waiting list with Financial Assistance Grants.  

This means that, to date, CJSTUF has provided over 100 families with financial assistance, either through grants or emergency aid since its founding in January 2010.  These families face incredible challenges.  One child has a breathing tube and g-tube (feeding tube) and relies on round-the-clock care by her family and nursing support.  One girl is less than two years old and is facing multiple open-heart surgeries.  Half of the recipients are battling cancer, facing multiple hospitalizations with intensive medications and therapies.  

While $500 will not solve any family's financial woes, that amount of money can make such a substantial difference.  These grants are providing assistance to pay utility bills and rent. One grant will help a family place a deposit on a new apartment.  They have been living with other family members for over a year.  These grants also help provide assurance to our families: they are not alone.  The community cares about their needs.  We are here to help. 

On a selfish note, these grants give me a way to pay it forward.  We keep Charlotte's spirit alive through the work of the foundation.  Every time I write a check to these families and address their envelopes, I think of my own inspirational butterfly. 

Thank you for helping to make all of this possible. 

Rachel

Co-founder & Executive Director
CJSTUF




Monday, November 26, 2012

Some VERY quick announcements!

Roger will be wrapping gifts at the Chesterfield Towne Center Barnes & Noble from 10am-2pm today!  There are other dates as well and some need a volunteer or two.  You can go to the website and sign up if you'd like to help out.



Today is also "Cyber-Monday" so please surf the web on over to HandmadeHomies4CJ which is our Business Of The Month for November.

If you are planning travel in the next year and can wait to book until February, the BOTM will be right up your alley.


Rachel and Roger will be travelling to Tiffin, Ohio this weekend for a multi-pronged event at Tiffin University.  Roger will be guest-performing at the annual "Christmas At The Ritz" concert on Saturday, Dec 1 and MIGHT be doing a vocal improv clinic for the students.  Rachel will be doing a book signing at the TU Bookstore as well.

The concert is a fundraiser and CJSTUF will be one of the beneficiaries.

Besides Black Friday and Cyber-Monday, another new trend is "Give Back Tuesday" where people are encouraged to donate to the charity of their choice.  Here's the DONATE button.  Why wait 'til Tuesday?


Monday, November 12, 2012

We Still Mourn, But It's Different


It never really ends.  We think about our beautiful baby girl every day; several times a day.  Sometimes it's pretty much constant.

Our adorable little ladybug
Take Wednesday, October 31 for example.  Throughout the day, as many of our friends and family were posting photos of their kids' costumes and discussing preparations for the evening's festivities, we were constantly reminded of the four Halloweens we were fortunate enough to spend with Charlotte.  One of our strongest memories is of Charlotte's second Halloween when she dressed as a ladybug and was quite possibly the cutest thing that EVER walked this Earth!  We took her to Randolph-Macon College to trick or treat in the dorms and it was so amazing to watch her figure out that when she knocked on doors and babbled something, the smitten students would give her stuff.  It was the first time I felt that parental melancholy that comes with knowing she'll never be this small again.

This year, we set up our traditional table out by the street and had a great time handing out goodies and seeing all the kids and great costumes; all the while thinking of our little peanut.

CJ on Election Day 2008
Or take Tuesday, November 6.  Election Day.  This was always a BIG day for us.  Both of Rachel and I were determined to teach Charlotte about the democratic process and to encourage her to develop her own voice on whatever issues she would face as she grew into an adult.  We always brought her with us when we voted, even in the local elections.  I would schedule my day around when I would be able to take Charlotte to the polling place and often she would "vote" twice in a day.

She filled our thoughts as we participated in the 2012 election.

And now we head into the Holiday Season and a new round of memories are poised to take over, keeping the mourning front and center.

It never really ends.

And yet, it's a little different now.  There are more of those good moments.  Like last Thursday at the Lunch Bunch which CJSTUF  facilitates at Children's Hospital of Richmond at VCU in conjunction with Connor's Heroes Foundation.  The food was catered by Christopher's Runaway Gormay (SO yummy!) and we served 71 people a good, moderately healthy meal when they might have had to visit the vending machines or resort to paying for fast food downstairs.  We know from experience that is something families should NOT have to deal with while facing a child's health crisis.

We also meet new friends every time we serve meals which lets them know about resources and provides us more reason to continue to expand the program.


Then there was November 10.  I ran the American Family Fitness Half-Marathon (part of the Richmond Marathon) and Rachel did a book signing at an arts and craft show where she sold some books and connected with several supporters.

Saturday morning, I almost decided not to do the half-marathon at all since I had popped something in my knee last Monday and it had been hurting all week.  I wasn't sure if I could even finish the race.  Then, of course, when I thought of Charlotte and what all the other families have endured, I put my whining away and suited up.

Good thing I did because it was probably the most fulfilling race I've ever run!  I got a lot of extra motivation right at the start line when I saw a man wearing a t-shirt that read, "13.1 Is Still Easier Than Chemo." Amen, dude.

Throughout the event, my mind was full of thoughts of Charlotte and so many others whose paths we've crossed.  I thought of Abbie Waters as I passed her old school, I thought of CJ's Godparents as I passed their house, I thought of the Klauers, the Goodmans, the Hubbels...lots of others.  I met a woman within the the first two miles from Newport News who was running her first half and only the third time, "in front of people."  I fell in with a small group of people at around the halfway point, many of whom just happened to have leg and knee issues.  There was a lot of self deprecating humor being passed around but we all finished!  And all along the way, were the occasional shout-outs to CJ's Daddy (on my bib) or Team CJ (on the shirt) or people who recognized me and shouted encouragement. I can't tell you how much that helps!

Kristin Mudd's Funky Shoes
Kristin's Funky Shoes Flipside

I finished (the main goal!) in about 2 hours and 40 minutes, the knee held out, and crossing the finish line, I let out a "WHOOP" like I never have before.  It was a great moment.  Then I caught up to Kristin Mudd and her funky shoes!  It was her first half EVER!  Kudos to her.





And CJSTUF continues to grow.  Thanks very much to Rachel's very capable Executive Directorship, our wonderful board, and support from the Network, we are having a tremendous year of fundraising and providing resources to our families.  We just had a very productive Strategic Planning Session and we have homework to do, after which, we will be ready to take a step up to the next level of operation for 2013 and beyond.

At Positive Vibe Cafe
So the therapy continues and, quite possibly, it's working.  Maybe.  Just a little.

Thursday, October 18, 2012

Every Day Is A Bonus!

That's one of our catch phrases.

It evolved during Charlotte's treatment out of the realization that we may be spending our last days with her.  It's our statement that no matter how inconvenient it may be to have to wait at the toll booth, or find that a piece of technology isn't working correctly, or to get mayo on your burger (when you expressly ordered one with NO MAYO!), it's all pretty insignificant when compared to the fact that the time you have to spend with loved ones is finite and can end at any moment.

Every Day Is A Bonus!

Like anyone, we find ourselves losing sight of this, occasionally (not very often but it happens).  We need reminders that Every Day Is A Bonus which is why we wear the bracelets, have photographs of Charlotte all over the place, and spend nearly every free moment we have working on/thinking about CJSTUF stuf.

Bedonna Wakeman's piece
The Fall Art Auction is coming up tomorrow at the Cultural Arts Center in Glen Allen and we're all working feverishly to get everything in place.   Besides the fact that it's a cool fundraiser, it's also one of those big reminders.  It's a reminder to us that what really matters isn't how much money we bring in but the fact that so many wonderfully talented artists have donated pieces for our event - everything from pieces of jewelry to a beautiful 4' X 5' painting from Pirate Alley Artist Bedonna Wakeman to a "commissioned" piece from one of our youngest contributors, Ani Checkosky.

These artists remind us that Every Day Is A Bonus!

There are also the volunteers who will be giving of their valuable time to make sure we have an event worth attending.  This includes three live interactive artists who will actually be creating pieces during the event to be auctioned off at the end of the evening.  There are also Brothers of Alpha Phi Omega from Randolph-Macon College, auctioneer Marlynn Turner, and of course, members of our amazing Board who will be helping to remind us.

The generous sponsors and those who have donated in lieu of tickets because they are able to attend remind us.

And the end result of it all,  besides keeping US centered, is continued support of the families in the best way we can with the resources we have been allowed to gather from you.

Now if we have a bit of fun while we gather those resources, can anyone blame us?  Because, "Hey, if you can't boogie, then what's the use?"

Did I mention the chocolate dessert bar with chocolate fountain?  What about the wine donated by Ian at the Caboose in Ashland or the very special surprise that we will be unveiling?  Reminders, reminders, reminders...

Tell those you love that you do.

Every Day Is A Bonus

Even now.


Tuesday, October 9, 2012

Right Now, Standby...



Let’s focus today’s post on the nuts and bolts of what’s going on with the Foundation RIGHT NOW.

The picture to the right is of the latest round of $500 financial assistance grants headed out in the mail today.  Five more families helped.  Five more unbearable situations made a tiny bit more bearable.  That brings the total number of families helped since CJSTUF’s inception to 95 (We’ll be hitting 100 soon enough)!  That doesn’t include the hundreds of people fed during the Lunch Bunch and other meals programs facilitated by the Foundation or the emergency financial assistance provided in the form of utility bills paid, gas cards purchased, etc...

There’s only one way these things happen and that’s through your generosity.  Roger and Rachel Reynolds, The Board ofDirectors, and all involved with CJ’s Thumbs Up Foundation would like to thank everyone who have helped make this year more successful that we could have possibly imagined.  And it’s not over yet.

Our most recent fundraisers, The Amazing Raise and the Groupon Grassroots Campaign, have raised over $4,000 ($2,300+ of that guaranteeing at least 7 Lunch Bunch meals which will feed no less than 420 people).

The next thing is the Eagle Rare Award contest that continues into January.  People can vote once every 24 hours.

Now, the 500lb gorilla in the room is the Fall Art Auction on Friday, October 19 at the Cultural Art Center in Glen Allen.  There will be a dessert bar including chocolate fountain (YUM!), wine donated by The Caboose in Ashland, live and silent auctions with a variety of pieces ranging in value from $20 to $1,800, and (here’s the really cool part) three interactive artists who will be creating pieces during the evening.  Those pieces will be auctioned off at the end of the evening.

Tickets are $50 each and can be purchased here.

The future holds the kind of promise that can only come from seeing the exit of a very dark tunnel after being trapped inside for an extremely long time.

There will be wonderful Businesses Of The Month in November and December.  Please standby for details.

Initial plans are underway for a benefit bluegrass festival on Saturday, July 20, 2013 and a 1,000-mile bicycle ride in 2014; no official date as of today. (Mr. Roger needs a good road bike)

And yet, there are still other plans that are too early in the works to mention here.

For RIGHT NOW, please buy your tickets to the Fall Art Auction, vote for Rachel every 24 hours, and start getting your holiday shopping lists together to fill at our Nov. and Dec. Businesses Of The Month.

All you can do for the future events is standby…

Monday, September 17, 2012

The Week Of Chaos!

As Childhood Cancer Awareness Month continues, we are having another typical week in the life of CJSTUF.org!  Lot's of stuff going on.



1) Groupon Grassroots:  Recently, we were awarded a Groupon Grassroots Campaign during which $10 donations are taken to help fund one Lunch Bunch meal for the families being treated up on the 7th floor of Children's Hospital of Richmond  (This is our meal program for which we have teamed up with Connor's Heroes Foundation). The campaign is live through Sept. 23rd and is taking $10 donations right now. The "tipping point" is $300. It's difficult to imagine that we wouldn't reach that amount but if somehow we don't, then the funds raised up to that point are not distributed and no one's credit card will be charged. If nothing else, we get exposure and experience.

If  the tipping point is reached, which it will, then the Lunch Bunch is guaranteed one more event.  We hope we end up with several.

2) The Amazing Raise: This is an exciting, 36-hour fundraising event being hosted by The Community Foundation/GiveRichmond.org.  It begins Wednesday, Sept. 19 at 6:00AM (we'll post the link as soon as we possibly can after it goes live at 6:00:01AM) and ends the next day at 6:00PM.  There are MANY creative ways to win matching funds and CJSTUF will be aiming for three specifically.

The first is the 50/50 Early Bird Match.  The first 15 organizations (and there are dozens) that receive 50 unique donations of $50 will receive $2,500 matching grants from the Community Foundation (That's FIVE families helped).  So please plan to wake up early and help us capitalize on this opportunity.

The second is called "Midnight Madness."  Simply put, the donation (of at least $25) that comes in closest to midnight on Wed night will receive an extra $1,000 (2 families).  We will be having a wildly fun karaoke party at ComedySportz in Richmond starting at 10:00PM and when midnight approaches, we will countdown to zero and get everyone to push the "send" buttons as close to 12:00 as possible.  YOU are invited.  Come stay up late on a school night.  You know you've always wanted to!

The third focal area is the "Lunch Break" on Thursday 12:00PM-2:00PM.  The organization that receives the most unique donations of $25 or more within that time frame will win $1,000 (2 more families helped).  We will be lunching at Pepicelli's Pizza in Ashland during that time and any donations that come in throughout the Lunch Break will be applied to the Lunch Bunch.  (Pepi's, by the way, just happens to be CJSTUF's Business Of The Month for September; another great reason to come in!)

There is a fourth area that we think we could win and that's the Long Distance Donor Award.  The donation that comes in from the farthest point on the planet (determined by billing address of the card used) will earn the non-profit $1,000 (2 MORE families)  The Network is pretty widespread and if the right people donate (all you in Europe,  New Zealand, Australia, Japan, Malaysia, Africa, China, Korea, etc... know who you are!), we could win that one as well.

Last year was our first experience with the Amazing Raise and with very little effort, you helped us raise just over $1,000 (2 families).  This year, if we win only one of the contests at which we're aiming, we'll more than double that.

3 and 4) Rachel still continues to hold her own in the two voting-based contests.  The Eagle Rare Life contest has her at 4732 at this writing and we have no way of knowing how well she's doing in the Lady Godiva Program.  Just keep voting every 24 hours and we'll let you know something when we do.

5) The "Every Day Is A Bonus" Fall Art Auction is coming up on Friday October 19th.  We've already started receiving reservations and artist donations, some of which are pretty amazing.  There will be live and silent auctions featuring paintings, photographs, children's art, stained glass art, arts services and an interactive experience where live artists will be creating pieces right there in front of everyone. And don't forget the chocolate dessert bar! If you'd like to reserve your place, click here.

6) Did we mention that Pepicelli's Pizza is the Business Of The Month for September?  We won't have a BOTM for October due to the Art Auction.  We'll let you know about Nov. and Dec. as we get closer.  This post is long enough already!

We'll rest in January.

Sunday, September 2, 2012

Every Vote Counts!






As you may have heard by now, Rachel has been named a candidate in two voting contests. Each one could help CJSTUF earn funds that we can use towards our mission. 

You don't have to register your email address or log in. Just click to vote every 24 hours.


Contest #1: Eagle Rare Award. Rachel was a runner up for this award last year and CJSTUF received $2000 that we are using for the Lunch Bunch program.  We could earn up to $30,000 for CJSTUF this year if we win the big prize! Rachel is currently in 5th place. Voting ends January 2013.  


Lady Godiva logo Contest #2: Rachel was one of nine women selected from over 1000 entries for the fall round of voting in the Lady Godiva Program. If she wins this round, CJSTUF gets $1000 and a chance to earn up to $10K in the final round. Voting ends September 26. 

We know that we have a wonderful Network. That is how CJSTUF came to be in the first place. In the last three years, our network has continued to grow and we appreciate all of the support.  Voting in these contests helps us achieve our mission and it only takes a few seconds of your time.  If you can spare a few more seconds, please share this blog in an email or on social media with your friends. Every vote counts!

Wednesday, August 29, 2012

Board Member Spotlight: Tom Checkosky. Co-Owner of Pepicelli’s Pizza Ashland


Board member since: January 2012

Tom and Lisa Checkosky
“I don’t believe in coincidences.” Tom Checkosky will be the first person to tell you that he’s here (meaning Ashland) “by the grace of whatever it is you want to call God.”  Checkosky used to be operational partner for 7 Domino’s Pizza restaurants in Western Pennsylvania. He started out as driver, became manager, worked his way up the ladder, and then left.

Before the recession hit, he was a regional manager of Best Buy for three days until the economy made them cancel plans for 10 new stores.

Then, after almost two years out of the food sector, he went into a local Pizza Pan restaurant to pick up an order and then proceeded to reconfigure the entire kitchen for the owners who seemed to be having “organizational issues.”  This lit the fire within Tom to get back into the pizza business.

Pepi seriously enjoys summer!
After an exhaustive search, Tom stumbled onto a pizza place for sale in Ashland, Virginia.  The landlord gave him a great deal on rent and even paid to move his store when Smokey Pig Catering left the space next to Ashland Ace Hardware. Other local residents wowed Tom with kindness, dinner, and good advice.  "I'm from up north.  I'm not used to people being nice to me without there being some kind of ulterior motive. I was sold."

And so Pepicelli’s Pizza of Ashland was established.  This was in 2007 and they are about to celebrate their 5th year in business.

Tom with Jimmy and Ani
Tom brought down his wife, Lisa, and two kids, Jimmy and Ani and they've been here ever since (EVERYONE helps at the store when necessary).

"Something always seems to happen every couple of years or so to make us move or whatever.  We've been in Ashland five years and it hasn't happened yet.  I'm convinced that we're supposed to be here."


The Checkoskys (and Pepicelli's Pizza) are active throughout the Ashland community via MAP, the Ashland Street Parties, and several other activities.

Through a strange series of “non-coincidences,” the Checkoskys became aware of CJ’sThumbs Up Foundation and were touched by the Reynolds’ story.  Tom was so moved that he decided to do everything he could to help make CJSTUF successful and even quit smoking as a result of his involvement with the Foundation.

Pepicelli’s Pizza donates meals to The Lunch Bunch (A joint effort between CJSTUF and Conner's Heroes Foundation to feed the families on the 7th floor of Children’s Hospital of Richmond) and was the Business Of The Month in May of 2011.  They will be the BOTM again in September, donating a portion of the month’s sales to CJSTUF.  On Monday, September 24th, CJSTUF co-founder Roger Reynolds will be delivering pizzas to Pepicelli's customers who add a small donation to their order.

Tom has dived into his CJSTUF participation with both feet and has become one of our most enthusiastic supporters.

Which is why we wanted to know the answers to:

4 and 1/2 Questions!!!

1) How often do you eat pizza made by another pizza place?

Answer: “Only on vacation and only mom and pop places.  Leonardo’s Pizza in the Outer Banks is a particular favorite as well as Causeway Pizza in Garden City Beach, NC.


2) Can you describe an atom? (I stole this from a website on interview questions)

Answer: “He’s the husband of Eve.”

(smart aleck)


3) How much taller than you is your wife, Lisa?

Answer: “5 inches.”


4) What animal, that you don't currently have, do you want most of all right now?

Answer: “I want either a big bird like an African Grey or a Cockatoo or a big dog (even though I already have two of each).”


and


1/2)  Don't you just love it when...


”employees don’t show up for work?”

Answer: “Yes I do!!!”  (There may have been a touch of sarcasm in his voice)

Visit www.pepicellis.com for information about Pepicelli's Pizza of Asland.

Monday, August 6, 2012

Board Member Spotlight


Melissa Owens

Board Member since: Winter 2011

Melissa has been involved with CJSTUF since the very beginning.  As a friend of the Reynolds’ and a Music Therapist at VCU Health System, she had the opportunity to visit Charlotte’s room often, bringing music, positive energy, and faithful minions, a.k.a. “interns,” to help make an unbearable situation a little more bearable.

            Melissa grew up with music all around her.  With a mother who majored in music in college, the norm in her family was attending concerts and musicals, gathering around the piano at home, and singing “99 Bottles Of Beer On The Wall” 450,943 times on road trips (ok, that stat is made up).

She began college life as a Communications Disorders major and switched to Music Therapy when she found that she could merge her two loves into one career.

Melissa became the first official fundraiser to help with Charlotte’s care when she and one of her "faithful minions," Miriam Smith, designed and ordered the first pink “Prayers For Charlotte” bracelets.  The bracelets were sold for $3 and the money was given to the Reynolds.

When a group of CJSTUF Board members began to rotate off due to the end of their terms, Melissa was on the top of the prospectives list and it wasn’t necessary to ask her twice to join.  She officially assumed her position in winter of 2011.

            But little did she know that she would eventually have to answer:

4 and 1/2 Questions!!!


What was the last earworm (song) to get stuck in your head?


What is your favorite animated character (Disney or otherwise?)
Jiminy Cricket


On a scale of 1-10, what is your level of expertise at reading upside down?
10! My secret skill is reading song lyrics upside down. 


Who is your inner superhero??
Xena


What would you do if…
“I had an extra day every week?”
I would have a technology-free day with my family, and share some time with my favorite local charitable organization, CJSTUF! : ) 






Well played Warrior Princess...Well played.

Monday, July 9, 2012

This Is Why We're Here

We here at CJ's ThumbsUp Foundation often post photos of financial assistance grants going out in the mail with the caption, "This is why we're here" or publish updates about this event or that, trying to keep everyone energized about the mission of CJSTUF.org.

But that's only part of it.

A large chunk of why this non-profit exists is because of a little girl named Charlotte Jennie who was born on July 9, 2005, seven years ago today.  SHE’S why this thing exists at all.

So many of you already know about Charlotte (CJ) that it seems ridiculously redundant to retell the story but what we will say is that because of this amazing, adorable, courageous, intelligent, curly-haired girl, and the way she charmed everyone she met (still seems to), we are moved to try and keep that energy moving forward.

It is very difficult to think that our little Monkey Butt would have just finished her second year of school, that she would now be swimming or going to camp, that we would be taking trips to see grandparents…

But that’s not the reality with which we’ve been entrusted.

The reality is that at any one time there might be upwards of 70 families of children receiving treatment on the 7th floor of VCU/Children’s Hospital of Richmond and so many others moving through the various outpatient clinics.

The reality is that we just sent out 10 more Financial Assistance Grants totaling $5,000 and that just barely brought us even with demand FOR NOW.

The reality is that there are many, many other parents, grandparents, siblings, and caregivers all struggling to keep it together right now, at this very moment, through the worst nightmare imaginable.

The reality is that, because of Charlotte’s inspiration, upon which we draw every day, you have been moved to support our mission which, in turn, gives us a very strong coping mechanism allowing us to face each day as it comes.  Please believe it when we say that some days the act of getting out of bed seems like more than we can bear.

Today is one of those days.  But we WILL get out of bed because of Charlotte and what this Foundation has become to those who have built it and to those who have benefitted from it (some of the same people fit into both categories).

So Rachel will go to her first day of school at The Dominion School For Autism as principal and Roger will meet donors and do his show at WHAN Radio.  Many will raise a chocolate milk toast and watch Mary Poppins or Finding Nemo or Lady and the Tramp or one of her other favorite movies (she had several).  A listen to the Curious George Soundtrack is in order as well. Or giving "five" to Snook from "Big, Big World."

Hopefully all will be inspired to be more than they are right now and keep growing from there.

This is why we’re here.

Happy Birthday, Baby Girl.