Charlotte's energy is better but still not great.

Again, we apologize for the delay in posts but there hasn't been too much to say over the last few days. Charlotte's energy is better but still not great. She gets tired very easily. 45 minutes of OT on Monday pretty much wore her out. She loves to very dramatically wipe her hand across her forehead and say "Whew! I'm TIIII-RRED!" (What a drama queen!). The shakiness in her arms and legs still seems to be present and may actually be a little worse. Her OT and I discussed it on Monday and she has a few ideas for therapy so we'll see what happens. Based on my research, seems that Valproic Acid can cause tremors too so don't know if that's related. She has been having a great time with Granny and Gramps. Granny has become the Resident Reader, keeping Charlotte engaged with book after book. Anybody remember the Sweet Pickles series? Well, my mom had bought these books for me and my brother when we were young and loved them. She had given them away a long time ago but recently found a FULL set on ebay or amazon or something and ordered them for Charlotte for her birthday. Charlotte LOVES them. Granny reads them over and over again, interspersing library books and other stories along the way. I LOVE the fact that my child loves books. Some kids sleep with stuffed animals. My kid falls asleep with piles of books in her bed. It warms my heart, I tell you!Her appetite is good and regularity is not an issue. Hooray. Scanxiety is in full effect. It's just there. Can't be helped. The countdown begins (less than two weeks). I keep trying to push it aside. Can't do much about it till we're there. But it's definitely hard to NOT think about it. It's only Tuesday and it's already been a fun week at romp n' roll. Winter registration has started (have you registered for YOUR winter class yet?) and we have been having fun with our Halloween costumes. Today, i was Super Grover. Yesterday, Roger was Count Refula and today he was a Pirate (someone called him the Jolly Roger...CUTE!). We are so grateful to my parents for their presence here. They are taking care of all things domestic for us including having meals ready, trimming the garden, raking leaves, and cleaning the house. Not to mention caring for Charlotte so that we can focus our efforts on the business when needed. We will miss them when they go...I guess that's all I have to say for now. As you can tell by the time of the post, I'm having a bit of trouble sleeping but at least I'm being productive in giving you an update. Off to bed...

Daddy will be here in less than 12 hours!

Daddy will be here in less than 12 hours! Yay!Late afternoon thunderstorms greeted Houston last night. We got some rain and thought our trip to the outdoor theater might be a bust, but the rest of the rain seemed to hold off and the lightning seemed to be distant enough not to bother us. The Luma Light Show was really neat. Here's a link to their website. The show has the performers and stage completely DARK and then the performers use puppets, juggling, large ribbons, sparklers, and other tools to make fabulous designs and dances on the stage. All the girls enjoyed it. We only stayed till intermission, though, because everyone was getting tired.Slept in this morning (Charlotte slept till after 10!!) and then we went down to another catered breakfast. Mikayla (our 9 year old friend) had a plan to set up her "nail salon" in the lobby and paint anyone's nails. I have some pretty sparkly purple polish on my nails now! She did a great job. Charlotte played for a bit downstairs and then decided she wanted to come back upstairs. I have spent the time vacuuming, cleaning the bathroom, and doing some initial straightening and organizing. There are piles to mail back to VA (at least 2 boxes!), piles of things that we may be donating to friends or just to RMH, and then, of course, have to pack up all the clothes, hats, etc. Fortunately our friend Halle just got a great donation of some duffel bags and shared one with us. That will help us with the journey home. I asked Charlotte if she wanted to do anything today but she seems pretty happy to lay low and play in her room. So that is what we will do. Sid the Science Kid is playing on the DVD player right now. We found out yesterday that she has an appointment with Dr. Khan early Wednesday afternoon. Dr. Khan rearranged his schedule to accomodate Charlotte next week so we are really grateful. Also, Roger got a call last night that they have scehduled her MRI for 8:30 that morning. I guess they want to get an initial scan already. So SCANXIETY has settled in with me already. It's not horrible but it's there. I'm trying not to get myself too worked up (I mean, really, what can I do about it? Que Sera, Sera) but every scan since May has given us disappointing news and I am really hoping that this one will buck the trend. On the other hand, it's better to get it over with now rather than wait a whole month. That could drive me bonkers too. So please begin the prayers for a clean scan. We need it to be as clean as possible!!!More news to come by Monday I'm sure.Rachel