Tuesday, June 26, 2012

Oh! The Chafing!


At the risk of slighting those of you in the “over 21” age range, I am rarely inspired by grownups anymore.  Not that grownups don’t do amazing deeds all the time, it’s just that on average, those deeds pale in comparison to what “our kids” achieve daily.
Len on the road
                This weekend, I was inspired by a grown up.  His name is Len Forkas and he (along with many others) got on a bicycle in Oceanside, California and pedaled nearly 3,000 miles across the United States, all the way to Annapolis, Maryland in what was called the Race AcrossAmerica.  Not only that, he won his division (50-59 years old) and placed 10th overall, edging out riders much younger than himself.

                Len had a bucket load of inspiration as he was using the event to fundraise for Hopecam.org, the non-profit organization he founded that connects homebound children undergoing treatment for cancer, and other life threatening illnesses, with their friends, families, and schools using laptops, high speed internet, and web cameras.
                Charlotte received a Hopecam notebook computer while she was undergoing treatment and we used it for Skyping, emailing, writing Caringbridge updates, and most importantly, for the Reading Vigil. We played recordings of friends/family reading books to CJ and people Skyped in from all over including our friend, Dr. Karen Massar who, while sitting in The Netherlands, read to Charlotte in Dutch.  It’s still one of the most beautiful things I’ve ever heard.

                One of the methods employed for keeping the purpose of the ride front and center (not to mention keeping Len pumped and focused), was to dedicate each day of his ride to one of the many children who have benefited from Hopecam’s endeavors.  On that day, Len would be read descriptions of the child as he rode. Charlotte got day 8 and a video dedication.

They also invited Rachel and me to Annapolis to be among the cheering crowd as Len crossed the finish line.  The wonderful people at Hopecam, including interim Executive Director Jennifer Bond, took very good care of us, paying for the room at The Doubletree Hotel and breakfast Sunday morning. When it became clear that Len was going to get in much later on Sunday then they had anticipated, they offered to pay for another night at the hotel so that we could stay and still see Len cross the “FINISH” line Sunday evening.

We didn’t mind since Annapolis is a beautiful town and was calling out to be explored by us. We figured we could leave early Monday morning in order to get Rachel to work in time.

So after a full day of walking, we settled at the courtyard into which the cyclists would be riding and waited.  There was a rather long time in between finishers which gave us time to network with people in the Hopecam crowd and with other riders’ crews.  One Canadian rider, nicknamed “The Hammer,” actually got hit by a car in Arizona yet was relatively uninjured and finished the race in ninth place overall.  One member of his crew had the torn up jersey he had been wearing at the time of the crash and waved it as he crossed the line.  There are many other stories and not nearly enough space.

Len hoisting his bike in celebration
We finally got word that Len was on his way and the large Hopecam crowd excitedly gathered around the finish line.  When he came around the corner in the dark with his various lights shining and blinking like a big rig on the highway, the crowd went nuts, us included.  When he got off that bike and immediately bent down to greet all the children who were assembled up front (and there were a LOT of them), it showed, even in his exhausted state, where his priorities lay.

Shannon
Soon, the emcee brought Len on stage to receive his medal, given to him by two time survivor and Hopecam beneficiary, Shannon Eastman.  Len wasted no time making sure everyone knew who the star of this event was.  “I just finished the toughest bike race in the world but it’s peanuts compared to what Shannon has had to do.” With Shannon standing close on the stage, he said, “I could stop at any time, Shannon couldn’t.  She had to finish.”

Throughout the evening, I found myself wondering over and over again, “How can I do something like this?”  It wouldn’t be easy.  Just thinking about the amount of time and effort it took to train Len, assemble the crew, plan who was going to do what and where, not to mention feeding everyone, is enough to make a lot of people quit before they even begin trying.

Roger, Len, and Rachel

But you know us; especially when we’re inspired.

Anyone wanna go for a bike ride?

Tuesday, June 19, 2012

Moving Forward

              
Our New Logo
Can’t do much else can we?  As Bruce Barton said, “When you are through changing, you are through.”  We’re hardwired to keep moving forward; to continually try to make our situation better even though sometimes all we do is repeat the mistakes of the past.  But move forward we must and that is what we’re doing here at CJ’s Thumbs Up Foundation (hopefully not with the whole repeating-past-mistakes thing).
Thanks to our generous Network (that’s YOU, generous reader) we’ve had a very good first half of the year.  Revenue is exceeding expectations due to increased donations, more successful fundraising events, and the release of Rachel’s book, Four Seasons ForCharlotte: A Parent’s Year With Pediatric Cancer.  It seems that so far, we have been doing things the correct way and our mission is being well-supported.
The Cover of Rachel's Book
                With all that in mind, it’s time to take some more baby steps forward.  This year, we will award a total of at least 25 financial assistance grants.  This almost doubles our impact from 2011 (so maybe “baby steps” is too conservative a term).  We also have plans to expand our Board of Directors and have welcomed some extremely capable members to the current board.  Our fundraising initiatives like the Butterfly Socials, the Thumbs Up Ball, and the Fall Art Auction continue to evolve into our primary annual events and we continue to seek ways to improve upon the last event’s success.
We are also modifying our online presence a bit.  In the near future, you will see more regular (weekly) blog posts covering various aspects of CJSTUF.org.  We are currently gathering stories and profiles of our Board of Directors, staff, local medical professionals, events, partnering non-profits, and most importantly, the reason we exist - our families.  We will spotlight these courageous families in an attempt to inspire the reader to do more, to dig deeper, or simply to help the healing process by making the families aware that they are not alone in their struggle.
You will soon be seeing small updates (in both look and function) to the website and social media outlets to include software upgrades, calendars, new widgets, and more efficient ways to keep up, and become involved, with CJSTUF.org.
One thing we are NOT changing is the mission.  We will also never forget the curly-haired, sweet-voiced little girl whose strength and courage is the inspiration for what we do every day. (We still miss you, Charlotte!)
It’s an exciting and bittersweet time for us here at CJ’s Thumbs Up Foundation as we continue to move forward, or as Jonathan Agin signs off of daughter Alexis’, Caringbridge posts, “…we are one day further, yet one day closer…”
We are so thankful to all who are helping us make unbearable situations a little more bearable.

Monday, May 7, 2012

Thumbs Up Campaign: Who Will Win?


The Thumbs Up Campaign is still going strong at many local Ashland businesses.  Have you seen the logo in some neighborhood storefronts lately?


Local Ashland businesses have volunteered to support the Thumbs Up Campaign.  Add a $1 (or more) donation to each transaction and 100% of the proceeds will benefit CJSTUF.  Each donor gets their name on a card which will be posted prominently in the business.




Current participating businesses include:
Pepicellis Pizza         208 S. Washington Highway, Ashland
NY Nails & Tan          107 N. Washington Highway (Ashland-Hanover Shopping Center)
Ashland Pack & Ship  225 N. Washington Highway (Ashland-Hanover Shopping Center)
Flower Depot           211 N. Washington Highway (Ashland-Hanover Shopping Center)
Cross Bros. Grocery   107 S. Railroad Avenue
Train Town Toy & Hobby 104 S. Railroad Avenue
1st Capital Bank-Ashland  409 S. Washington Highway, Ashland


100% of the proceeds will go to CJSTUF's programs, providing financial assistance to families in need.  The business that sells the most cards will win a team-building workshop from Comedy Sportz Improv Theater valued at $1500!


The Thumbs Up Campaign will be going on through May 31st. 

Saturday, April 7, 2012

Thumbs Up Campaign: Local Businesses Give Back

If you're shopping around Ashland in the next month or two, you might say some of the proprietors are "all thumbs".  


Local Ashland businesses have volunteered to support the Thumbs Up Campaign.  Add a $1 (or more) donation to each transaction and 100% of the proceeds will benefit CJSTUF.  Each donor gets their name on a card which will be posted prominently in the business.




Current participating businesses include:
Pepicellis Pizza         208 S. Washington Highway, Ashland
NY Nails & Tan          107 N. Washington Highway, Ashland (Martin's Shopping Center)
Ashland Pack & Ship 225 N. Washington Highway, Ashland (Martin's Shopping Center)
Flower Depot           211 N. Washington Highway, Ashland (Martin's Shopping Center)
The Thumbs Up Campaign will be going on through May 31st. 


If you own a local business that would like to participate, contact Roger ASAP.  We will supply each business with donor cards, posters, and information about the foundation that can be distributed to customers.  The business that raises the most funds by May 31st will win a team-building comedy workshop for their staff from Comedy Sportz Improv Theater valued at $1500!


PS You don't have to be an Ashland business to participate! 



Thursday, April 5, 2012

Get in the Spirit with some Art!

Our April fundraiser is going to help us get into the spirit of Spring.  


Spirited Art Richmond is hosting as our Business of the Month.  Join us on Tuesday, April 24th from 6:30-9 PM and you can paint your very own butterfly!


What's that you say? 
You're not artistic? 
You can't paint?!?  


Forget all those ideas. 


Spirited Art makes it easy and fun.  I attended a Spirited Art event about two months ago with some of the other writers from Richmond Mom.  I am one of the least artistic people I know and I found it both easy and fun.  The instructors guide you through the process step by step.  You can customize your picture and everyone's creation is unique.  PLUS, you have access to affordable wine and appetizers from The Wine Loft (conveniently located next door) so no matter what happens, we'll be relaxed and contented!  
My first Spirited Art Creation
from start to finish
If I can do it....
...you can do it!


Visit our website if you need more information.  Cost is $35 for the evening (wine and appetizers are extra). Space is limited so call today or go online to register for our fundraising night.  A large portion ($25) of each registration comes back to CJSTUF so this should be a great night for our organization.  


By the way, speaking of Richmond Mom, don't forget to nominate your favorite Richmond Super Mom by April 14th. We will get a $5 donation for every nomination!


Also, now is the time to start thinking about hosting a Butterfly Social in May. What is a Butterfly Social? It's a great excuse to have a party or special get together for your friends.  You can give your party any theme you desire and use it as an opportunity to raise awareness (or even a little $$) for our organization. We can provide you with an entire event kit, including invitations, an event checklist, party ideas, and even some cool CJSTUF swag for your guests.  Stay tuned for more information or contact us if you have questions.  


Happy Easter, Happy Passover, and Happy Spring to one and all. 

Monday, February 6, 2012

FAQs about the Thumbs Up Ball

The Thumbs Up Ball is less than 2 weeks away! 
Do you have your tickets yet?


Over the last few weeks, we've received some questions about the event so I figured I would give some answers right here on the blog.  


What is the Thumbs Up Ball?
It's a family dance celebrating Valentine's Day! It's a great opportunity for the family to enjoy an evening out.  Plus, you will help your community. 100% of the proceeds from the event will benefit families in the Richmond area dealing with chronic and life threatening illness.  


When and where does the Thumbs Up Ball take place?
The event is on February 18th from 4:30-7 PM at Shady Grove UMC in Richmond's West End, 4825 Pouncey Tract Rd. 


What should I wear to the Thumbs Up Ball?
There is no official dress code. You can come in your fanciest party clothes or your most outlandish Hawaiian shirt.  If you have been looking for an opportunity to get dressed up for a night on the town, though, this is a great excuse.  Richmond Photographics will be on hand to take family photos for a nominal donation to CJSTUF. How often do you get the whole family looking spiffy in one place?


What will there be to eat?
Pepicelli's Pizza of Ashland has donated pizza and subs. Kelly's Cakes will be providing cupcakes and a cake as well.  We will also have coffee, tea, punch, and assorted snacks.  This is an alcohol free event.


What activities will be there for the kids?
We will have some simple craft activities for all ages.  Plus, musical entertainment from Offering will provide great opportunities to strut your stuff on the dance floor.  There will be something for everyone.


I've never been to a Silent Auction before. How does it work?
Local businesses have provided some great items for our Silent Auction. We have everything from homemade kid's clothes to yard tools to manicures, massages, and gift certificates from great local restaurants. Each item or package will have a starting bid (usually half the item's value). During the event, add your name and bid to the items you want.  At the close of the auction, the highest bidder wins! We have Silent Auction packages ranging in value from $35 for a ionic foot spa from Massage Within to $1500 for a corporate team-building training package from Comedy Sportz Richmond!


Do I have to bid on items in order to come to the event?
No. The Silent Auction and raffle are optional.  

Raffle? There's a raffle too?

Each ticket to the event will give you one entry into the raffle. You can buy additional raffle tickets for $1 each at the event.  We have a variety of raffle items including gift cards to local businesses and tickets to local events.


Should I bring money to the event?
If you wish to purchase family photos or bid on silent auction items, be sure to bring a little extra dough. We will be able to accept cash, checks, or credit/debit cards at the event.


Ok, you've convinced me. I'm in! How do I get tickets?
Go to the CJSTUF website and order tickets online. You can pay via credit card through our website or send a check within 3 business days.  


Will you have tickets available at the door?
Tickets are $10 in advance.  If we don't sell out, tickets will be $15 at the door.  


See you there!

Saturday, February 4, 2012

World Cancer Day

Today is World Cancer Day. 


We remember survivors. We remember friends and family taken far too soon. We remember the doctors, nurses, and researchers who devote their lives to searching for cures and caring for the sick.  We remember our heroes who fight with their lives.  


Many of us think of these things every day. 


Before January 20, 2009, cancer was something that happened to other people.  Before that day, I heard about a friend or acquaintance (usually an adult) who had received a diagnosis, who had died, or who was living in remission after a hard-fought battle.  I felt empathy for them but I don't think I could completely understand. 


When we were drafted into the war, Roger and I were brought immediately to the front lines. We watched our daughter endure surgeries and treatment protocols. We saw her lose her hair (twice). We waited for news on scans with anxiety and anticipation. We learned what was truly meant by the words "a matter of life or death."  


Our lives will never again be the same. 


As we recognize World Cancer Day, think of how you can make an impact with anyone fighting the battle.  You don't have to cure the disease to make a difference.  


Make a meal for a family in crisis. Offer to babysit for siblings so a parent can spend more time at the hospital or balance the rest of their lives with their child's healthcare.  Send a note, just to let someone with cancer know that you are thinking about them. Let them know that you admire their courage.  


There are hundreds of organizations in the world devoted to helping those affected by cancer. Some focus on research, while others focus on caring for the individuals and families at every stage of diagnosis, treatment, recovery, and (unfortunately) sometimes death.  Use World Cancer Day as an opportunity to learn more about what you can do to help. You can volunteer your talents and donate your time and money to so many worthy causes.  


Until we can eliminate cancer, we continue to remember.