Sickle cell disease is a life threatening genetic disorder that causes chronic pain, delayed growth, ulcers, jaundice, and other medical issues. Ongoing treatments are necessary and can range from dialysis, blood transfusions, medical management through steroids and pain medications, and (when possible) bone marrow transplants. While symptoms and treatment can vary across patients, it is a disease that requires lifelong management and frequent medical care.
The Price Family knows the reality of Sickle Cell disease only too well. Thirteen year old Nile (one of a set of triplets) has battled the disease since birth. Last year, Nile was fortunate to receive a bone marrow transplant that has cured his sickle cell disease and placed him in remission; however, he still faces chronic health challenges on a daily basis. His four-year-old sister Olivia also has the disease.
The Price family has struggled to balance their days between hospital visits and a "normal" life. They have faced the emotional, physical, and financial challenges that this disease brings to every family it impacts. Thanks to CJSTUF, the family was able to receive two Financial Assistance Grants in 2010: one for Nile and one for Olivia. The funds helped the family with their ongoing medical and household expenses.
The Price family helps us recognize that Every Day is a Bonus.
As we move into 2011, our focus as a charitable foundation is shifting from building the foundations of an organization to ongoing sustainability. To continue our mission, we need your help. CJSTUF has a goal to raise $50,000 in individual and corporate gifts during 2011. Every contribution is valuable. If you believe in the mission of CJSTUF, please visit our website and pledge your support through our NEW donation page. You can make a one-time donation or pledge an ongoing contribution in any amount.
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