Showing posts with label every day is a bonus. Show all posts
Showing posts with label every day is a bonus. Show all posts

Thursday, October 18, 2012

Every Day Is A Bonus!

That's one of our catch phrases.

It evolved during Charlotte's treatment out of the realization that we may be spending our last days with her.  It's our statement that no matter how inconvenient it may be to have to wait at the toll booth, or find that a piece of technology isn't working correctly, or to get mayo on your burger (when you expressly ordered one with NO MAYO!), it's all pretty insignificant when compared to the fact that the time you have to spend with loved ones is finite and can end at any moment.

Every Day Is A Bonus!

Like anyone, we find ourselves losing sight of this, occasionally (not very often but it happens).  We need reminders that Every Day Is A Bonus which is why we wear the bracelets, have photographs of Charlotte all over the place, and spend nearly every free moment we have working on/thinking about CJSTUF stuf.

Bedonna Wakeman's piece
The Fall Art Auction is coming up tomorrow at the Cultural Arts Center in Glen Allen and we're all working feverishly to get everything in place.   Besides the fact that it's a cool fundraiser, it's also one of those big reminders.  It's a reminder to us that what really matters isn't how much money we bring in but the fact that so many wonderfully talented artists have donated pieces for our event - everything from pieces of jewelry to a beautiful 4' X 5' painting from Pirate Alley Artist Bedonna Wakeman to a "commissioned" piece from one of our youngest contributors, Ani Checkosky.

These artists remind us that Every Day Is A Bonus!

There are also the volunteers who will be giving of their valuable time to make sure we have an event worth attending.  This includes three live interactive artists who will actually be creating pieces during the event to be auctioned off at the end of the evening.  There are also Brothers of Alpha Phi Omega from Randolph-Macon College, auctioneer Marlynn Turner, and of course, members of our amazing Board who will be helping to remind us.

The generous sponsors and those who have donated in lieu of tickets because they are able to attend remind us.

And the end result of it all,  besides keeping US centered, is continued support of the families in the best way we can with the resources we have been allowed to gather from you.

Now if we have a bit of fun while we gather those resources, can anyone blame us?  Because, "Hey, if you can't boogie, then what's the use?"

Did I mention the chocolate dessert bar with chocolate fountain?  What about the wine donated by Ian at the Caboose in Ashland or the very special surprise that we will be unveiling?  Reminders, reminders, reminders...

Tell those you love that you do.

Every Day Is A Bonus

Even now.


Sunday, February 6, 2011

How We Help: A Family Profile

Sickle cell disease is a life threatening genetic disorder that causes chronic pain, delayed growth, ulcers, jaundice, and other medical issues. Ongoing treatments are necessary and can range from dialysis, blood transfusions, medical management through steroids and pain medications, and (when possible) bone marrow transplants. While symptoms and treatment can vary across patients, it is a disease that requires lifelong management and frequent medical care.


The Price Family knows the reality of Sickle Cell disease only too well. Thirteen year old Nile (one of a set of triplets) has battled the disease since birth. Last year, Nile was fortunate to receive a bone marrow transplant that has cured his sickle cell disease and placed him in remission; however, he still faces chronic health challenges on a daily basis. His four-year-old sister Olivia also has the disease.

The Price family has struggled to balance their days between hospital visits and a "normal" life. They have faced the emotional, physical, and financial challenges that this disease brings to every family it impacts. Thanks to CJSTUF, the family was able to receive two Financial Assistance Grants in 2010: one for Nile and one for Olivia. The funds helped the family with their ongoing medical and household expenses.

The Price family helps us recognize that Every Day is a Bonus.

As we move into 2011, our focus as a charitable foundation is shifting from building the foundations of an organization to ongoing sustainability. To continue our mission, we need your help. CJSTUF has a goal to raise $50,000 in individual and corporate gifts during 2011. Every contribution is valuable. If you believe in the mission of CJSTUF, please visit our website and pledge your support through our NEW donation page. You can make a one-time donation or pledge an ongoing contribution in any amount.

PS: Did you receive our February Newsletter? If not, go to our website and sign up for our email newsletter list! (or check your spam filters)