To all our local network:
Kathy Lesher, the social worker from Noah's Children, suggested we have an event for children before Charlotte's passing as a way for them to prepare for it and to say goodbye. There will probably be more than one and the first will be this Sunday, December 27th at 2pm. For want of a better title, I'm calling it, "Butterflyaway" and it will be short and simple. We'll read the Very Hungry Caterpillar, do some butterfly arts and crafts in the art room, and then the kids can play in the gym for a while.
Charlotte will not be there which means either Rachel or I will not be there but the other one of us will be.
Kathy will also be available to answer anyone's questions. She might also enlist the aid of an organization called Full Circle Grief Center.
This event is free and open to absolutely everyone. Please email me if you plan to attend. We will open the 4:00pm slot as well if there is signifigant interest. A third possible event could be Sat, Jan 2 at 5:00pm.
This is extremely short notice, I know, so I'm hoping I could talk everyone into spreading the word.
CJ is resting comfortably. There have been many, many wonderful readers through the house and she has been awake about half the time. We've moved her Dexamethosone back up to 3ml from 2ml to see if that will help her swallowing difficulties.
There is an accupressurist/accupuncturist coming over tomorrow who has been recommended by Dr. Anna. Her name is Elizabeth and she told me that she has worked with a patient with swallowing troubles before and has had significant but temporary success improving the patient's ability to get food down. Temporary is all we need.
As I type this, I realize this is the anniversary of my Grandpa Homer's death (Dec 23-This will probably post after midnight). This kind of stuff puts quite the surreal tint to the holidays, doesn't it Gramses?
what is your email so people can let you know
ReplyDeleteYou can email us at rachel@cjstuf.org or roger@cjstuf.org. OR go to our website and click on the contact us link. Thanks.
ReplyDeletePraying for your family, that Charlotte is comfortable, that the Lord is sustaining you all.
ReplyDelete