7:22 AM, CST
We have been receiving many, many messages from children or parents of children (both known and unknown to us) telling us of the kids' concern for Charlotte. These kinds of events, besides being terrifying (some of the worst moments of my life, actually) for the immediate family, can be very stressful for the other children in the patient's life.
Some of our friends have come up with great, creative activities to help kids (and adults) cope. Auntie 'Retta is the mahstah of that sort of thing and her star tree will now be a fixture in CJ's room forever.
8:20 AM, CST
Charlotte is in and out of sleep. She seems kinda "grumpy" right now and I don't blame her. she aked for chocolate pudding this morning! Told her she could have some after they take another picture of her head. Just waiting for rounds and for doctors to give an update on MRI schedule.
Thanks to Roger for his post and for posting the photos. That princess pic is a favorite of many.
1:33 PM, CST
She had a decent morning. The steroids have her a little "puffy" but her color is good. She is still on morphine so she is groggy but she keeps talking or trying to talk. She is looking at all her pictures, talking about her friends, and she even tried to tell the "interruptin
She is in the MRI right now and it should be about an hour or so. Much easier this time as the anesthesia went straight into her IV.
Our doctor put us in touch with another family that has gone through a similar experience with their daugther. Started when she was 18 months. She is now 4 and cancer free. Just checks every 3 months. They actually live in the Fredericksb
On a fun note, a toilet leaked on the PICU and flooded the whole side where her room is. We have had to move to a new room so there will be a new number directly to her room. I will post it when I know it. You can always call the main MCV hospital number and they will direct you to her new room.
More to report later.