Wednesday, November 25, 2009

More of the Same?

There isn't a whole lot of news to report but I suppose an update of some type is in order.

Charlotte spends her days eating, reading, watching tv/movies, and sleeping. Roger and I have been puttering around getting things ready for our upcoming trip, doing Foundation "stuff", staying on top of activities at RNR....sometimes I wonder where the time goes. It's very nice to just snuggle up with her and watch movies sometimes.

On Monday, we journeyed out in the rain for story time at the Ashland Library. We saw a few friends and it was good to get out of the house. Later, I met with our social worker from Noah's Children and then went to RNR to catch up on some work. Charlotte's Devon came by to spend the day and she had a great visit. They read books, Charlotte ate, and they watched a few shows together. Good bonding time.

Tuesday we had a nurse visit from Noah's Children and then ran some more errands to get out of the house. One ominous errand was to go by the doctor's office and get Charlotte's DNR (do not resusciatate) order signed by the physician. It seems very strange to have something like that in our posession. I just look at it and it makes everything very REAL.

Lunch was at Chick-fil-A (of COURSE!) and Charlotte ate well. She eats slowly but well. Sometimes it's very difficult to be in a place with so many other children because you immediately see the differences between her abilities and those of typical children. It's still a shock to me to see kids much younger than her who are able to manipulate stairs, climb the playground equipment, and feed themselves. It kind of slaps me back into reality. Yesterday it made me really sad. After our day out, we returned to the house and Charlotte and I watched the Tinkerbell movie (the new sequel, actually) to rest.

Last night, Roger and I had a much-needed date night. We went out with some friends to Emilios Tapas out in the Short Pump area. It was a small group and Roger was the only guy. (poor thing!) We had a good time eating, drinking Sangria, talking, and generally enjoying one another's company. It was a great escape and much thanks to Jan Light and her friend Anne for coming over to hang out with Charlotte. I think they had a great time with our girl as well.

This morning we are off to Children's Hospital to get a new stroller and (hopefully) a walker that may help Charlotte get around a little more independently. Her balance is WAY off right now and she can't walk well without holding one of our hands. We don't have huge plans for Thanksgiving but we've got a LOT coming up in the next week so it will give us some time to get ready.

Gotta go take a shower and face the day.

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