Sunday, May 3, 2009

It's Roger's Turn

Hi everyone,
My turn. It's Sunday and the rain has been off and on pretty intense the last couple of days. Very much paralleling our emotions. I have that big weight on my chest again and the all-over body ache is creeping in. But Charlotte is, again, having a great time of it. She's being read to by Granny, eating strawberries, drinking chocolate milk with special green-tea supplements being added covertly (Thanks NM family). Anything to boost the immune system.

Speaking of that, I hope I don't disappoint anyone but CJ is going to become something of a germaphobic hermit the next few weeks. We really want to limit the number of visits and anyone who comes over may either be forced to wash hands and use hand sanitizer upon entry or may not even get to see her. She won't be going to any of the benefits organized in her honor the next couple weeks and we're working on getting a webcam setup between her Montessori school and home so she can at least see friends online.

Anyone else with webcams can visit with us then as well. Who knows? Maybe some of you will actually get to see Charlotte more than usual!

We are dealing with the latest "bump" (albeit a pretty big bump) on our journey. It wasn't entirely unexpected but we were REALLY hoping not to have to navigate this one. We both had something of an emotional crash yesterday evening and it was comforting to have each other within arms reach if we needed it.

We're dealing because we have to. What else are we going to do? We're certainly nowhere near the end of options and the docs working on her team are some of the best in the biz. If this detour doesn't work, then we look down another path, then another, etc...

One day at a time, right? Breath in, breath out, repeat.

Gotta go eat burritos.


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