Tuesday, January 5, 2010


Don't get too excited...CJ is still here.

I just wanted to make everyone aware that Charlotte's memorial service on 1/16/10 has been moved to 1 PM to accomodate other events at RMC.

Thanks for the offers to help with the reception. As expected, they are pouring in and I am forwarding everyone's info to Kim and Meredith. I think we have all the musicians lined up.

If you are an amateur videographer (or professional for that matter) and would be willing to offer your services, please email Roger. I think we would like two or three camera people so we can get a few angles. We definitely want to be able to send a copy of the DVD to family and friends from out of town who cannot attend so we want to be able to capture the service as closely as possible. From what I understand, we will have a sound-tech there.

As the afternoon has waned, her breathing has become a bit more labored and erratic. We have actually given her a few boost doses of Atavan and Morphine. These seem to be easing any discomfort. Her color is changing (more gray) and her skin is much cooler. With every hour, we feel that she is closer to heaven. I think she is still very comfortable. Stay tuned...


  1. Thank you for the update. You ALL are in my thoughts and prayers.

  2. Her comfort, and your comfort--these things I pray for constantly. She is an angel here on earth. Prayers continue....Melissa

  3. You are in our thoughts and prayers. It's so difficult to understand why things happen as they do. I know as parents we want her discomfort to end,. Just remember that we may not understand why things happen as they do , but everything has a purpose-- sometimes it just takes longer to recognize. You are amazing -- truly inspiring-- Thank you for sharing the beauty of your family with us. Laurie and Allen

  4. I want you to know that our family has been praying for you little girl Charlotte in our Sunday School Class and Church. It is difficult to understand why things happen the way they do but hopefully one day GOD will reveal to us why things happen. I want to take this time to say you have been inspiring to us and I pray GOD will be with you now and the minute your little girl goes to heaven and the days ahead of you. I won't stop praying for you and your family.

  5. Thanks for the update and May God be with you and your family now.

  6. Praying, praying, praying for peace and comfort for all three of you. You are all so amazingly strong!

    Beth Barbaro

  7. When my grandfather passed away under similar circumstances, it was just as you are describing. When his blood pressure dropped significantly, it was only a matter of a couple of hours after that until he passed.

    Thinking of you all...

  8. WHere do you guys live.. i know you are in virginia. If you are close and dont find anyone else i would do some photography for you.. and photo editing, whatever you would like <3

    e-mail me and let me know


  9. sounds like CJ desires to live and not die and declare the works of the Lord because God is not doing this and He gets no pleasure, honor or glory in the death of those that die -
    Psalms 118v17 - Ezekiel 18v32 - Isaiah 54v15 - Proverbs 18v20-21
    I speak Blessings over you and may grace, unmerited favor and spiritual peace, harmony, unity and undisturbedness with God be yours - Ephesians 1v2

  10. Dear Rachel, Roger, and Charlotte,
    I have been reading the blog for awhile, but haven't had the courage to comment. My words seem inadequate even now. My heart is breaking for you. Rachel, I have been thinking of the song you taught me so many years ago at UM about..."all the fish are swimming in the water...bubble, bubble, bubble, bubble, POP!" and wanted to sing it to Charlotte, but I expect she knows it already! I'm wishing you some small bit of joy somehow for this next part of your journey.
    Love and SAI roses,
    Christine (Pollard) Leist

  11. I know you don't know me, but I had to comment and say I am so sorry about what you have and are going through. I can't imagine the pain it feels to watch your child go through something like this. I have 3 kids and pray everyday that they stay healthy. My heart and prayers goes out to you and your family. God Bless

  12. Prayers coming your way from Tennessee. You are such an amazing family and I am inspired every time I read a post you guys write. I pray for God's peace that passes all understanding to fall on your home in the days to come, and that you be filled with the joy of Christ who is our strength and comfort.

  13. I was at the Ashland Coffee and tea funraiser for charlotte last year and i have her pink bracelet. I also contributed at Susan Greenbaum's show last Saturday. I know that susan has been supportive and my thoughts and prayers have been with Charlotte. I live in Ashland on Virginia Street. I made a bead bracelet that is pink,white, and purple and love love to give it to her.

  14. As a fellow Ashlander I have been keeping up with your journey and struggles. You have truly inspired me and given me strength to see life in a new way. May God bless you in all that you do and for being such wonderful parents for Charlotte, she is very fortunate that God paired you all together.

  15. Roger,Rachel and Little Charlotte,
    Sending love and prayers and Butterfly kisses to sweet angel Charlotte.
    The DeLuke Family

  16. Rachel and Roger,
    My heart is breaking May you both find some peace. I'll continue praying for the three of you.


Note: Only a member of this blog may post a comment.