Well thanks to your HUGE response, the survey we created closed automatically (the free survey option closes at 100 responses). So if you would still like to complete the survey, we created a new version (same questions). Go HERE to complete the survey if you haven't already. As mentioned before, we know that not everyone will be able to participate in this but for those who can and want to, we would like to get feedback as to how you would participate. We just want to have a way to celebrate the end of Charlotte's treatments and will include anyone who is interested.
Not much update from the hospital and no time for a longer update so we will have to write more later. I hope no news is "better" news.
Mom on duty!
I'm here in the hospital and she seems to be doing pretty well. She hasn't had any fevers for a while so that is good. Still getting loaded up with antibiotics, antifungals, anti-everything. I don't know if Roger mentioned this in the last post, but she had a visit from a pediatric gynecologist (yes, indeed, there is such a thing!) to check out her "bum-bum". [And for those of you who may be confused, bum-bum is Charlotte's word for vagina...not bottom] Anyway, they were concerned because the rash/skin breakdown was similar to that seen in flesh-eating bacteria which, while rare, can happen with kids who have low counts and neutropenic fevers. So far so good and we just continue to monitor everything for changes.
Otherwise, I understand that she has taken lots of walks today and she's eating a good bit (especially they pretzel and cheddar goldfish I brought which seem to be a new favorite).
Roger's dad is coming in from Tennessee today (yay) to help us out. That is a blessing! I think that will help with a lot of our coverage issues. If all goes according to plan, we will ride this out until next week and get ready for the process to start all over again. My mom is planning to be back here on or around April 30th.
That's all I have to report. It was a busy day at romp n' roll getting prepared for summer registration next week and teaching classes. Now it's Roger's turn...