Thursday, September 10, 2009
New drug, Velcade
Hi everyone,Not too much in the way of updates but here is the latest:Charlotte got her new drug (Velcade) yesterday. It took a while to get everything set with the meds and the infusion but once they got everything they needed at the clinic, the whole process took about 5 minutes. The biggest side effect for her right now seems to be sleepiness. She fell asleep around 5 PM yesterday and woke up about 7 PM (just as I came home from work). Then she was up until almost 2 AM and at 11:40 AM on Thursday, she is still asleep! So needless to say, her schedule is a little "off". Otherwise, she seems to be ok. The word from the pharmaceutical company that administers this drug is that successive doses have to be given at least 72 hours apart so she will get the next dose on Monday and then probably Thursday of next week. Then another the following Monday. I am stil nursing my infection/cold. The antibiotics are hopefully doing their thing. The cough is S-L-O-W-L-Y fading and I still can't hear anything out of my left ear so my tube must be completely clogged. Joy. I am slowly getting some energy back so that is good. We have a busy fall session coming so I must convalesce quickly!!Some other news is that Three Oaks Montessori has given Charlotte "Honorary Student" status. They are going to include her in as many activities as she is able this year and are going to try to help us with meals as well as bringing her baskets of activities at home from time to time. We are very grateful to Kim, the director, for this offer and hope that we will be able to have Charlotte participate as much as possible. A few of Charlotte's friends from her old "Montessori House" are at Three Oaks so we hope this will be a good transition. Plus they are trying to get a Romp n' Roll 2 Go mobile program going at the school so it should be great all around!Thanks to Meredith for bringing us dinner yesterday. It was YUMMY!!! (and healthy).So she has PT this afternoon. Roger went in to work this morning and I have the PM shift. Busy weekend ahead. No news on the MRI but we will let you know when we know. Rachel
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